Mothers' Experiences of Having Children with Autism in A Special School (SLB) Negeri Jepara
DOI:
https://doi.org/10.55606/icesst.v1i2.305Keywords:
Mothers' experiences, children with special needs, autismAbstract
Background: Autism or ASD (Autism Spectrum Disorder) is a range of conditions characterized by some degree of impaired social behavior, communication and language, and a narrow range of interests and activities that are unique to the individual and performed repetitively. The majority of the phenomenon of maternal stress is higher than paternal stress. The purpose of this study was to explore more deeply the experiences of mothers who have children with autism in SLB Negeri Jepara. Methods: This study used a qualitative method with a phenomenological approach. The informants of this study are mothers who have children with autism. The selection of informants was carried out using purposive sampling technique (nonprobability sampling). The data collection technique used is in-depth interviews and data collection tools used such as interview guideline formats, notebooks, pens and other supporting tools such as cellphones as recording devices during interviews. Results: The results of this study are in accordance with the themes that the researcher has identified. According to the participants, it was not easy to immediately accept the child's condition when diagnosed with autism, so they experienced a variety of feelings, participants also made efforts to seek treatment for the child, during the process of caring for the child, participants said that the child had special care and some received social support. Conclusion: In this study it can be seen that there are four corresponding themes in the results. However, the four themes are less varied, so further research needs to be done on the experiences of mothers who have children with autism by developing these themes.
autism
References
Boham, S.E. (2013). Communication patterns of parents with autistic children: Study on parents of autistic children at Agca Center Pumorow special school in Banjer Manado village, accessed on 29 May 2018,
<https://ejournal.unsrat.ac.id/index.php/actadiurna/article/view/2886/2436>.
Braun & Clarke. (2006). Using thematic analysis in psychology, Journal of qualitative research in psychology, accessed on March 08, 2018,
<http://search.proquest.com.ezproxy.flinders.edu.au/docview/223135521?accou ntid=10910>.
Department of Health. (2012). Ministry of Health commemorates International autism day, accessed January 26, 2018, <http://www.depkes.go.id/pdf.php?id=1881>.
Fitriani, A., & Ambarini, T.K. (2013). The relationship between hardiness and parenting stress levels in mothers with autistic children. Surabaya: Airlangga University, accessed January 11, 2018, .
Istiqomah, A. (2014). Emotion regulation of mothers with autistic children (Thesis). Surabaya: Sunan Ampel State Islamic University Surabaya, accessed on May 27, 2018, <http://digilib.uinsby.ac.id/526/7/Bab%204.pdf>.
Jawa Pos News Network. (2013). Patients with autism in Indonesia continue to increase, accessed on January 26, 2018, <https://www.jpnn.com/news/penderita-autisme- di-indonesia-terus-meningkat>.
Kusumastuti, A.N. (2014). Stress of single mothers with autistic children. Depok: Gunadarma University, accessed January 11, 2018,
.
Noor, M., Indriati, G., & Elita, V. (2014). Mothers' experiences in caring for autistic children at school age. Riau: Riau University, accessed March 29, 2018,
<https://media.neliti.com/media/publications/185038-ID-pengalaman-ibu- dalam-merawat-anak-autis.pdf>.
Pratiwi, R.A. (2014). Relationship between casein-free gluten-free diet frequency score and autistic behavior score. Semarang: Diponegoro University, accessed May 27, 2018,
<http://eprints.undip.ac.id/41986/1/579_RIFMIE_ARFIRIANA_PRATIWI_220 30111150003.pdf>.
Rachmayanti, S & Zulkaida, A. (2011). Parental self-acceptance of children with autism and its role in autism therapy. Depok: Gunadarma University, accessed May 24, 2018, <http://www.ejournal.gunadarma.ac.id/index.php/psiko/article/view/277>.
Rahmawati, N.A., Muchmuroch, & Nugroho, A.A. (2013). The relationship between self- acceptance and social support with stress in mothers who have autistic children at SLB autism in Surakarta. Surakarta: Sebelas Maret University, accessed on January 15, 2018,
.
Sa'diyah, S. (2016). Overview of psychological well-being and parenting stress of mothers with autistic children. Malang: Muhammadiyah University, accessed January 11, 2018, .
Sofia, A.D. (2012). Parental compliance in implementing gluten free casein free diet therapy for children with autism at Yayasan Pelita Hafizh and SLBN Cileunyi Bandung. Bandung: Padjadjaran University, accessed May 29, 2018,
<http://jurnal.unpad.ac.id/ejournal/article/view/779/825>.
World Health Organization. (2017). Autism spectrum disorder, accessed January 22, 2018, <http://www.who.int/mediacentre/factsheets/autism-spectrum- disorders/en/>.
